Monday, January 9, 2012

I have POTS Disease (Postural Orthostatic Tachycardia Syndrome) anyone else feel like their loosing freedom?

I have had a very long year . I got diagnosed last Jan. I am not allowed to drive, swim alone, walk up stairs alone, and be in charge of or responsible for my own children. Wooow! Some times I can't figure out where my life has gone. I am not going to live a sappy miserable life! yet I don't recognize my own. I have two children the oldest is six he is very athletic hes in K- 4'5 and size 5 shoe. The 5 year old is Pre-K AND diagnosed last august with Autisum. He is Buzz Lightyear! They just dont understand when mommy will go outside and run and play. My 6 year old is always searching for cool temp places I can work play or be. My husband wants to obsess about me ping out 4 times a day. He always trying to fall proof the house. ME I spend most of the time trying to make all of them including my parents feel good about my disability so much so I don't think I am able to be honest with myself. so I was just really wondering if anyone else with pots feels trapped watching lives leave

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